
FUNDACIÓ LLUÍS ALCANYÍS UNIVERSITAT DE VALENCIA DE LA COMUNITAT VALENCIANA
FUNDACIÓ LLUÍS ALCANYÍS UNIVERSITAT DE VALENCIA DE LA COMUNITAT VALENCIANA
2 Projects, page 1 of 1
assignment_turned_in ProjectPartners:IL CERCHIO Società cooperative sociale consortile, CROATIAN HYDROGEN ASSOCIATION, WH Gelsenkirchen, CROATIAN HYDROGEN ASSOCIATION, FUNDACIÓ LLUÍS ALCANYÍS UNIVERSITAT DE VALENCIA DE LA COMUNITAT VALENCIANA +5 partnersIL CERCHIO Società cooperative sociale consortile,CROATIAN HYDROGEN ASSOCIATION,WH Gelsenkirchen,CROATIAN HYDROGEN ASSOCIATION,FUNDACIÓ LLUÍS ALCANYÍS UNIVERSITAT DE VALENCIA DE LA COMUNITAT VALENCIANA,AVAPACE,IL CERCHIO Società cooperative sociale consortile,FUNDACIÓ LLUÍS ALCANYÍS UNIVERSITAT DE VALENCIA DE LA COMUNITAT VALENCIANA,Federação das Associações Portuguesas de Paralisia Cerebral,Federação das Associações Portuguesas de Paralisia CerebralFunder: European Commission Project Code: 2016-1-ES01-KA204-025419Funder Contribution: 255,489 EURCerebral Palsy (CP) is a motor disorder accompanied by sensory, communication, behavioral, cognitive and perceptual disturbances, affecting movement and posture. 2 to 2,5 per thousand births in Europe has CP (1 per 500 persons = 1.000.000). CP cannot be cured, but persons can live a full life with proper care and supports, improving movements, intellectual development, level of communication and social relationships, improving their Quality of Life (QoL) according to the Convention on the Rights of Persons with DisabilitiesFeeding and physical activity are closely linked the QoL of persons with CP (PCP), especially with their physical and emotional wellbeingHowever, inclusive feeding and physical activity are not fully implemented due to a lack of; • Awareness and knowledge of parents and professionals about the effectiveness of inclusive feeding techniques from the earliest stages of life• Feeding ability of many adults with CP who have not been adequately supported in its childhood. They are not sufficiently aware and trained on the possibilities for accessing to a healthy and satisfying feeding and accessible tools at their disposal• Awareness and understanding of the impact on the emotional well-being of feeding aggressive techniques usually employed and the importance of food as an element of pleasure and exercise of rights• Initiative and knowledge of PCP and families regarding their participation in inclusive physical activities, alternatives and opportunities CP-WELLBEING is launched with the main objective of increasing the competences (attitudes, skills, knowledge) of Persons with Cerebral Palsy (CP), families and professionals about how to implement inclusive feeding and physical activity with a global Wellbeing and QoL approach, through an innovative training program.The project has the next specific objectives:• To raise awareness and motivate the full collective about the importance of inclusive feeding and phys• ical activity as a tool for improving QoL of PCP.• To transfer knowledge, tools and guidelines to parents of children with CP and professionals to enable inclusive feeding and integrative physical activity from the earliest stages of life• To transfer knowledge, tools and guidelines for adults with CP, families and professionals, regarding inclusive feeding and physical activityNext partners from 6 countries will participate:• 4 entities working in the field of supporting persons with Cerebral Palsy (AVAPACE, FAPPC, HURT, IL CERCHIO), involving a big collective of persons, families and professionals. • 1 University & Clinic specialized in Nutrition and Healthy Lifesytles, with experience in developing training actions in this field, including actions addressed to persons with special needs• 1 Technological Centre specialized in development of ICT solutions adapted to collectives with special needsThe next results will be obtained;• Co-Created Methodological Guide will be developed, with the direct participation of End Users, with the main objective of determining the key contents, methodologies and tools to be developed• Training Materials addressed to persons with Cerebral Palsy, families and professionals for facilitating the implementation 4of inclusive feeding and integrative and adapted physical activity.• Designed Experiential Training Activities addressed to persons with Cerebral Palsy, families and professionals for facilitating the implementation of inclusive feeding and integrative and adapted physical activity.• Development of an e-Training Platform, including awareness, training contents and tailored and adapted ICT-Games solutions for supporting the implementation of Training Materials and Designed Experiential Training Activities.• Creation of 4 CP-WELLBEING UNITS in all the CP-Associations of the Consortium in order to ensure the sustainable exploitation of the project after the project lifetime.• Development of Dissemination Actions addressed to the European collective related to persons with Cerebral Palsy.VALIDATION ACTIONS will be organized on each country, based on the practical implementation of Training Materials, Designed Experiential Activities and e-Training Platform, involving about 40 persons with Cerebral Palsy and families and 5 caregivers. Evaluation and analysis will be done. Project Activities will be completed with Management and Implementation actions IMPACT during the project lifetime:CP-WELLBEING will benefit a number of persons during the project lifetime:• 160 persons with Cerebral Palsy and their families will be trained (40 in Spain, Italy, Portugal and Croatia), through their participation in the validation actions • 20 professionals (5 in in Spain, Italy, Portugal and Croatia) will be trained, through their participation in the validation actions • 1500 persons with Cerebral Palsy, families and professionals (300 in Spain, Italy, Portugal, Croatia and Germany), will be aware, through the dissemination actions.
more_vert assignment_turned_in ProjectPartners:WH Gelsenkirchen, Associação Portuguesa de Portadores de Trissomia 21, FUNDACIÓN ASINDOWN, Rejtett Kincsek Down Egyesület, FUNDACIÓ LLUÍS ALCANYÍS UNIVERSITAT DE VALENCIA DE LA COMUNITAT VALENCIANA +7 partnersWH Gelsenkirchen,Associação Portuguesa de Portadores de Trissomia 21,FUNDACIÓN ASINDOWN,Rejtett Kincsek Down Egyesület,FUNDACIÓ LLUÍS ALCANYÍS UNIVERSITAT DE VALENCIA DE LA COMUNITAT VALENCIANA,Downov sindrom Slovenija - Drustvo za kakovostno zivljenje ljudi z Downovim sindromom,Asociatia Langdon Down Oltenia Centrul Educational Teodora,Downov sindrom Slovenija - Drustvo za kakovostno zivljenje ljudi z Downovim sindromom,FUNDACIÓ LLUÍS ALCANYÍS UNIVERSITAT DE VALENCIA DE LA COMUNITAT VALENCIANA,Associação Portuguesa de Portadores de Trissomia 21,Asociatia Langdon Down Oltenia Centrul Educational Teodora,FUNDACIÓN ASINDOWNFunder: European Commission Project Code: 2015-1-ES01-KA204-016170Funder Contribution: 175,978 EURPeople with Down syndrome (PDS) have a higher genetic predisposition to obesity, which reduces their quality of life and even life expectancy. Healthy Lifestyles are the way to control obesity in PDS. A sensible approach to nutrition, eating, regular exercise and healthy routines helps to prevent and reduce weight gain in childhood, adolescence and adult lifeHealthy Lifestyles are not implemented enough due to a lack of i) awareness and understanding of PDS and their families; ii) empowerment of PDS reducing their motivation and medium-long term effects; iii) rigorous technical information,; iv) a tailored and accessible training methodology and tools adapted to PDS, families and professionalsMain objective of HEALTHY DS is increasing the competences (attitudes, skills, knowledge) of the collective around Down Syndrome (DS) (PDS, families and professionals) about how to prevent and reduce obesity while increasing their empowerment, through a innovative training program. The project has the next specific objectives:- Increasing the awareness and understanding of PDS and their families on the impact of Healthy Lifestyles and Empowerment - Collection and evaluation of technical information, existing cases and success factors for transferring Healthy Lifestyles and Empowerment practices - Developing a Training Methodology based in the combination of Healthy Lifestyle and Empowerment approaches- Adaptation of the Training Materials, Practical Activities and Tools to the different capacities of the DS collective- Development of accessible and usable ICT Tools for supporting the Training MethodologyNext partners from 6 countries will participate:- 5 entities working in the field of supporting PDS involving a big collective of persons, families and professionals.- 1 University & Clinic specialized in Nutrition and Healthy Lifesytles, FLA_UV, with experience in training actions in this field, addressed to persons with special needs- 1 Technological Centre, IAT, specialized in development of ICT solutions adapted to collectives with special needsThe next results will be obtained;- Determination of key success factors and lessons learnt for the implementation and training of Healthy Lifestyle Models within an Empowerment environment for PDS involving families and professionals- Determination of the specifications for the development of a successful Training Program - Development of 1 Training Methodology and 1 Set of Training Materials, Practical Activities and Tools - Development of 1 e-Training Platform, including awareness, training contents and tailored and adapted ICT solutions based on gaming for supporting the Training Methodology- Creation of 5 HEALTHY DS UNITS in the Associations belonging to the Consortium for the sustainable exploitation of the project- Development of Dissemination Actions The next methodology will be applied. Revision of critical aspects for a Healthy Lifestyles transference and implementationGuidelines for Healthy Lifestyles (nutrition, exercise, habits) of PDS within an Empowerment environment. Nutrition needs of PDS and healthy alternatives as well as applicable indoor & outdoor physic activities and habits will be determined. Successful implementation factors for transference, empowerment practices, exploitation of ICT Tools and competences development will be identifiedDevelopment of Training Materials and Activities adapted to PDS, families and professionals and roles (trainers and trainees), including specificities based on age, health situation, weight, country…It will be develop;• Adapted Training Materials; bases for improving Healthy Lifestyles of PDS within an Empowerment environment, among others: Awareness; Nutrition needs; Healthy Lifestyle Pyramid; Food alternatives; Menus combinations; Customized diets; Eating practices, food portions sizes; Indoor&Outdoor activities; Habits, resting, hygiene…);Self-decision making process.• Adapted Practical Activities to be implemented both in professional assistance and private/ domestic /family environments; Development of Healthy Menus; Healthy and Autonomous Purchasing in local markets; Healthy Cooking; Practicing Healthy Outdoor Activities; Practicing Healthy Indoor ActivitiesDevelopment of ICT supporting tools and e-Training PlatformDevelopment of ICT Tools integrated in an e-Platform/Website for boosting the implementation of the training methodology. They will be based on gaming and accessibilityf or motivating PDS and facilitate its exploitation: Self-diagnosis of Healthy Lifestyle, Selection of healthy food and activities...Project Activities will be completed with Management and Implementation actions IMPACT during the project lifetime:• 192 PDS, 125 family members and 113 professionals trained directly through pilot validation actions, exceeding the initial goal of involving • 3,581 family and professional PDS, the object of the awareness
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