
MEDCOM
MEDCOM
1 Projects, page 1 of 1
Open Access Mandate for Publications and Research data assignment_turned_in Project2023 - 2026Partners:FGM, E-GOVERNMENT CENTER FOR SOCIAL SECURITY SA - IDIKA SA, CDISC, EHTEL, DW +54 partnersFGM,E-GOVERNMENT CENTER FOR SOCIAL SECURITY SA - IDIKA SA,CDISC,EHTEL,DW,GNOMON,HL7 INTERNATIONAL,WIV,EMPIRICA,FOUNDATION FOR RESEARCH AND TECHNOLOGYHELLAS,EICTA,ECHALLIANCE COMPANY LIMITED BY GUARANTEE,SECRETARIA REGIONAL DA SAUDE,NATIONAL EHEALTH AUTHORITY,Department of Health,CVTT-ISCTE,CDISC,i-HD,MEDIQ AS,DNV,BRIDG OU,Cineca,Cineca,CVTT-ISCTE,betse-health,TICSALUT,EMPIRICA,Sciensano (Belgium),E-GOVERNMENT CENTER FOR SOCIAL SECURITY SA - IDIKA SA,TELEMEDICINE TECHNOLOGIES,GNOMON,EHTEL,IEEE TECHNOLOGY CENTRE GMBH,UNINOVA,EUCROF EUROPEAN CRO FEDERATION,EICTA,EUCROF EUROPEAN CRO FEDERATION,betse-health,IHE-EUR,TELEMEDICINE TECHNOLOGIES,ECHALLIANCE COMPANY LIMITED BY GUARANTEE,MEDCOM,DW,DNV,MEDIQ AS,MEDCOM,SECRETARIA REGIONAL DA SAUDE,FGM,Department of Health,Charité - University Medicine Berlin,UV,HL7 INTERNATIONAL,TICSALUT,UNINOVA,FOUNDATION FOR RESEARCH AND TECHNOLOGYHELLAS,IEEE TECHNOLOGY CENTRE GMBH,Government of Ireland,NATIONAL EHEALTH AUTHORITY,IHE-EURFunder: European Commission Project Code: 101136734Overall Budget: 7,803,630 EURFunder Contribution: 7,803,630 EURxShare envisions everyone sharing their health data in EEHRxF with a click-of-a-button. The xShare button to be featured across health portals and patient apps and allow people to exercise their data portability rights under GDPR. Hence, the European EHRxF will be the driver for research and innovation in EHDS. xShare will establish the European EHRxF Standards and Policy Hub, the “Hub” partnership of six standards developing organizations (CEN/TC251, HL7 Europe, IHE Europe, SNOMED, CDISC, IEEE) market actors (DIGITAL Europe, MedTech-Europe and EUCROF), supported by competence centers, nationals and regional authorities and European SMEs. xShare will develop: 1) Harmonized common specifications, create and maintain xBundles i.e., collection of common data specifications including FHIR implementation guides, tools and data sets, and educational support for key EHRxF health information domains as noted in the EHDS draft regulation Annex 1. 2) A set of common elements across EHRxF health information domains applicable across EHDS-1 (JA-9), public/population health (EHDS-2), and clinical research. 3) Extended harmonized IPS specification to include care plans and making it fit for the purpose of clinical research use cases i.e. clinical trial eligibility, real world data, patient reported outcomes, and returning clinical research data to patients. 4) xShare feature the xShare Button in 8 adoption settings in Hospital network (Italy), National portal (Greece, Ireland, Cyprus), regional network with emphasis in medical tourism and the connection of the public to the private sector (Catalunya and Madeira), entry of digital health applications to the myHealthSpace ecosystem in France. Care plans will be demonstrated in Denmark. xShare investigate the feasibility and value of the EU xShare Industry label as a vehicle towards implementing the draft EHDS regulation. Lastly open calls at the last year of the project aim to onboard with EHRxF almost 100 settings across Europe.
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