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STICHTING INTEGRAAL KANKERCENTRUM NEDERLAND , Utrecht University , INT , University Hospital in Motol , EUROPEAN CENTRE FOR CERTIFICATION AND PRIVACY , Västra Götaland Regional Council , DIGICORE , CLB , ENGINEERING - INGEGNERIA INFORMATICA SPA , UDEUSTO , MULTIMED ENGINEERS , Oslo University Hospital , Västra Götaland Regional Council , University Hospital in Motol , INFERENZE , CERTH , SERGAS , CLININOTE SPOLKA Z OGRANICZONAODPOWIEDZIALNOSCIA , UKESSEN , HL7 INTERNATIONAL , UDEUSTO , ENGINEERING - INGEGNERIA INFORMATICA SPA , CENTRE FOR RESEARCH AND TECHNOLOGY HELLAS CERTH , MOU , UPM , HL7 INTERNATIONAL , SERGAS , FBK , FUNDACION PUBLICA GALEGA DE INVESTIGACION BIOMEDICA INIBIC , NIPH , IIS-FJD , CLININOTE SPOLKA Z OGRANICZONAODPOWIEDZIALNOSCIA , DIGICORE , Essen University Hospital , MULTIMED ENGINEERS , MOU , TNO , COI , EUROPEAN CENTRE FOR CERTIFICATION AND PRIVACY , COI , TNO , STICHTING INTEGRAAL KANKERCENTRUM NEDERLAND , INFERENZE , AP-HP , NIPH
The main objective of this project is to establish a Data Space for rare cancers (RC) that will make possible the re-use of existing multisource health data (cancer registry data, national registries, data from biobanks etc.) across European healthcare systems leveraging emerging interoperability technologies and AI approaches. The realized "Rare Cancer Data Ecosystem" is expected to improve the quality and the organization of RC patients care, and to increase knowledge on rare cancers advancing health research, so that all patients have equal access to high quality specialist care. The project approach will be experienced in the framework of the European reference network for rare adult solid cancers (EURACAN).
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