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Including Students with Misophonia Disease in European Schools

Funder: European CommissionProject code: 2020-1-IT02-KA201-079622
Funded under: ERASMUS+ | Cooperation for innovation and the exchange of good practices | Strategic Partnerships for school education Funder Contribution: 449,145 EUR

Including Students with Misophonia Disease in European Schools

Description

Misophonia is a severe and particular form of decreased sound tolerance, and discomfort in the ears or earache, associated with sound exposure. The term “Misophonia” appeared in 2001 for the first time, in a scientific paper by the neuroscientists Margaret M. Jastreboff and Pawel J. Jastreboff. In this paper they distinguished Misophonia from Phonophobia, a well-known sound disorder with psychological origin. Differently from Phonophobia, Misophonia appears to be a disorder at neurological level. At the moment, researches and studies on Misophonia have reached not final but important goals. In 2017, an experimental study carried out by the Institute of Neuroscience at Newcastle University and led by Sukhbinder Kumar (who is a staff's member of the present project), revealed a physical difference in the frontal lobe between the cerebral hemispheres of people with Misophonia, with higher myelination in the grey matter of ventromedial prefrontal cortex. Misophonia causes children, adults and the elderly who are affected by it, to behave in a way to prevent from entering louder environments, and from working and interacting socially.The very first important aspect to be faced when working around Misophonia is that if a large number of people suffer from it (various surveys show that about the 15-20% of people have Misophonia symptoms), only a low percentage of them knows the origin and nature of their suffering. For this reason, the project will carry out an articulated activity about Misophonia-related knowledge: as a disease with severe consequences on a person’s life in school circle (as well as with family members, at work, with friends); and – at the same time – as a condition that can be easily recognized and effectively managed by misophonic people and people living or interacting with them. After the need analysis already conducted by the partnership, the “Misophonia@School” project aims to act at the educational level with two different purposes that appear to be the most relevant now:-- the first, on the very specific school level, by creating a teacher training on-line course and an innovative screening protocol – based on the most recent scientific results and built as a mobile application – with which primary, middle and high school teachers will be able to individuate pupils with Misophonia and to manage their very condition;-- the second, on an ampler students' life level, by diffusing among students' families (and other kinds of educators, sport trainers, etc.) open and scientifically-based knowledge about Misophonia-related issues that can affect various emotional/educational/development processes, through the setting up and running of a European Web Resource Centre on Misophonia and the production of a methodological and scientific handbook.Therefore, the Intellectual Outputs of the project will be:-- IO1: Misophonia Mobile Application. An app for teachers, to be used in classrooms, that will make them able to apply and carry out an innovative screening protocol to individuate students with Misophonia.-- IO2: Misophonia E-learning Course. The e-learning training course for teachers will present all educational, environmental and behavioural strategies to help pupils with Misophonia during their everyday school life.-- IO3: Misophonia Handbook. Methodological and scientific information dealing with the more recent findings on Misophonia and illustrating the innovative screening protocol will be produced and presented.-- IO4: Misophonia Web Resource Centre. Targeted to families and other informal contexts' educators, it will select, collect and organize relevant and scientifically-based open information.The Misophonia@School project will last 36 months and will be implemented by a consortium of ten partners from eight member countries (Italy, Austria, Slovenia, Cyprus, Iceland, Spain, Turkey and Poland). The partnership includes a variety of subjects (health & research centres, schools, organizations active in various educational fields, ICT agencies, publishers), bringing all the specific skills required to reach the project's goals. Due to the very important field of intervention, each partner will use its large network of similar organizations and stakeholders to give emphasis to the diffusion of the project’s contents and results, that will be available in nine languages. During the project, transnational meetings and multiplier events will be held in all participating countries.In Europe, knowledge around Misophonia disease is not sufficiently diffused. Many centres/initiatives were born in various countries, but there are no initiatives to act together at transnational level. Resources and efforts have to be linked in order to reach our goal: for this reason, the Misophonia@School project represents the starting step for the setting up of an educational strategy shared at European level, to face an educational disadvantage that is not rare, but is rarely know.

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